About
I maintain and curate two separate clinical research databases of clinical and laboratory information, DNA, and tissue and serum repositories for research projects associated with the study of chronic liver disease:
- Paediatric Liver Disease Database: Children with cholestatic liver disease including cystic fibrosis, biliary atresia and neonatal hepatitis, and
- Chronic Liver Disease Database: adults with the inherited iron-loading disorder, hereditary haemochromatosis
In addition, I have been instrumental in assisting with facilitating the establishment of the National Haemochromatosis Patient Registry, driven by the patient support group Haemochromatosis Australia, in collaboration with Curtin University, QUT and Lifeblood, which was funded by the Federal Government Department of Health and Aged Care. This registry was established using de-identified clinical information provided via Prof Lawrie Powell’s legacy haemochromatosis database housed at QIMR Berghofer.